The Phoenix Rising website has extensive information on the XMRV news:
The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients appeaXMRV in chronic fatigue syndromers to be a demarcating point in the history of this illness. The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.
Amid concerns that the blood supply was contaminated the NIH officials announced they’d already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases – XAND (X Associated Neuroimmune Disease).
The pages are:
* Game Changer – XMRV prevalence, diagnosis, history, etc.
* Hope and Caution
* Treatment
* Transmission
* Proving XMRV: the Next Steps
* The Puppet Master?
* Resource Center
* Discussion Center
For more information on this intriguing discovery please visit The Phoenix Rising
James - October 21st, 2009
This highly informative 2½-hour presentation and Q&A covered a multitude of intriguing details, clarifications, insights, open questions, and activities (lots) that patients, researchers and media pundits worldwide have been speculating about for months.
Storms caused area Internet services to fail during the meat of the presentation, but the HHV-6 Foundation and ProHealth have made the full event available in video, and viewers’ takes on key points will be emerging day-by-day.
James - January 28th, 2010
• Iron is essential for a number of enzymes involved in neurotransmitter synthesis.
• Analysis of cerebrospinal fluid in fibromyalgia syndrome (FMS) has shown a reduction in the concentration of biogenic amine metabolites, including dopamine, norepinephrine and serotonin.
• This study aimed to investigate the association of ferritin with FMS.
James - January 28th, 2010
The aim of this case series study was to investigate and report on patients with neuropathic pain who responded to treatment with omega-3 fatty acids.
Methods: Five patients with different underlying diagnoses including:
• Cervical radiculopathy,
• Thoracic outlet syndrome,
• Fibromyalgia,
• Carpal tunnel syndrome,
• Burn injury…
…were treated with high oral doses of omega-3 fish oil (varying from 2400 to 7200 mg/day of EPA-DHA).
James - January 28th, 2010
There is evidence that disorders in inflammatory and oxidative and nitrosative (IO&NS) pathways and a lowered antioxidant status are important pathophysiological mechanisms underpinning myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS).
James - January 21st, 2010
In October 2009, together with the Cleveland Clinic and National Cancer Institute, the Whittemore Peterson Institute published findings in Science regarding the discovery of XMRV in the blood of Chronic Fatigue Syndrome (CFS) patients. The testing method, validated in multiple other labs using positive control samples, uses a unique process that was extensively peer reviewed before publication and provides the most accurate results available.
James - January 21st, 2010
Several studies provided evidence for generalized hyperalgesia [heightened sensitivity to pain] in fibromyalgia or whiplash-associated disorders. In chronic fatigue syndrome, however, pain is a frequently reported complaint, but up to now, evidence for generalized hyperalgesia is lacking.
James - January 21st, 2010
“Sit tight,” leading U.S. ME/CFS experts counsel a confused global patient community.
James - January 21st, 2010
Researchers have discovered a protein in blood that can be used to diagnose chronic fatigue syndrome, a breakthrough that could help detect the ailment during physical checkups.
James - January 18th, 2010
UK scientists say they can find no proof that a particular virus is the cause of chronic fatigue syndrome (CFS) or ME, contrary to recent claims.
James - January 7th, 2010
Chronic fatigue syndrome (CFS) makes people angry. Not so much the condition itself, which is associated with diffuse body pain, persistent tiredness and loss of concentration, but the science around it. After an American team announced last year that they had found a novel virus in 68 of 101 CFS patients, a UK team just reported that they failed to find the virus in any of the 186 patients they studied. Knives have already been drawn in the latest round of a long-running battle.
More @ Mind Hacks
James - January 7th, 2010
Individuals views expressed in Brainstorm (The Web Site) do not necessarily reflect those of the Wellington ME/CFS Support Group.
Any information provided is not intended for use as, or to replace professional medical/diagnostic advice. If you have medical issues you should consult a physician.
Brainstorm (The Web Site) and the Wellington ME/CFS Support Group assumes no responsibility for the choice or outcome of any treatment by its readers.
Open Door is a unique form of community-based television that allows groups or individuals to apply to make a documentary programme about an issue that concerns them. This 'M.E'. episode looks into the lives of people suffering from Chronic Fatigue Syndrome. Despite 'normal' outward appearances syndrome sufferers are affected by debilitating exhaustion and 'brain fog', and can face long-term bed-ridden isolation, job loss, and skepticism about the reality of their illness.
Everybody is welcome to join Gerda every Friday between 11:00-12:30 at 27 Mexted Terrace, Linden, Tawa (Tawa Art and Craft Society Inc building)
Fine art, painting, poems, craft, scrapbooking, artist trading cards etc. It is about creating something with people to whom you don't have to explain about ME/CFS. Bring your art project or come a long and get some ideas what to do. If you just want to pop in for a coffee you are most welcome to.
For more information email the group, or contact Gerda.
Download the Groups information leaflet.
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